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Wednesday, February 5

  1. page home edited {title3.jpg} ... by Alison Bailey, Bailey Castellina, ME/CFS "expert ... with Helena.…
    {title3.jpg}
    ...
    by Alison Bailey,Bailey Castellina, ME/CFS "expert
    ...
    with Helena.
    See also my own Blog on different subjects at: http://annisbetweenworlds.blogspot.co.uk/

    See side panel for various links on managing ME. Recent news from Alison who uses "ME management" techniques to live a normal life.
    Some ideas for a wheat free Christmas Menu for someone unable to eat Christmas pudding or cake
    (view changes)
    1:04 am

Sunday, December 22

  1. page wheat free Christmas Menu edited Wheat-free Christmas Menu Wheat-free Christmas Menu I've created a healthy menu to celebrate C…
    Wheat-free Christmas Menu
    Wheat-free Christmas Menu
    I've created a healthy menu to celebrate Christmas for both Christmas Eve and on Christmas Day (Continental and English customs) avoiding wheat, apple and tomato as an M.E survivor who can eat some sugar. Some of the ideas should be suitable for those with M.E who cannot eat traditional Christmas pudding and Christmas cake. Those with M.E cannot afford to indulge themselves by eating rich or fatty foods. Eating any added sugar feeds the yeast in the digestive system and one can end up feeling toxic for days or weeks, as a result. This adds to the fatigue and other symptoms so best to "go easy". As for any dried fruit, I never touched it in M.E as it packed full of sugar and has moulds too.
    {http://2.bp.blogspot.com/-0P_NdAb8ctU/UrbmwhfPvBI/AAAAAAAAAqw/57sE3PHeZ-A/s320/cherry.png}
    Christmas
    Christmas is a
    Traditional English Christmas foods that I am including are: figs, smoked salmon, chopped chestnuts, Brussels sprouts, honeyed parsnips, duck fat, plums, cranberry, Stilton, port and possibly brandy butter. I have also tried to use foods plentiful in season, such as Brussels sprouts and parnips. Incidentally, buckwheat is not wheat and could be eaten by those allergic to wheat (though best to test it first in very small quantities).
    Christmas Eve
    (view changes)
    7:12 am
  2. page wheat free Christmas Menu edited Wheat-free Christmas Menu Wheat-free Christmas Menu I've created a healthy menu to celebrate Ch…
    Wheat-free Christmas Menu
    Wheat-free Christmas Menu
    I've created a healthy menu to celebrate Christmas for both Christmas Eve and on Christmas Day (Continental and English customs) avoiding wheat, apple and tomato as an M.E survivor who can eat some sugar. Some of the ideas should be suitable for those with M.E who cannot eat traditional Christmas pudding and Christmas cake. Those with M.E cannot afford to indulge themselves by eating rich or fatty foods. Eating any added sugar feeds the yeast in the digestive system and one can end up feeling toxic for days or weeks, as a result. This adds to the fatigue and other symptoms so best to "go easy". As for any dried fruit, I never touched it in M.E as it packed full of sugar and has moulds too.
    {http://2.bp.blogspot.com/-0P_NdAb8ctU/UrbmwhfPvBI/AAAAAAAAAqw/57sE3PHeZ-A/s320/cherry.png}
    Christmas is a time to eat foods that one usually does not normally eat, not necessarily to indulge in rich food. Christmas is also not necessarily just about traditional dishes, but they have their place.
    Traditional English Christmas foods that I am including are: figs, smoked salmon, chopped chestnuts, Brussels sprouts, honeyed parsnips, duck fat, plums, cranberry, Stilton, port and possibly brandy butter. I have also tried to use foods plentiful in season, such as Brussels sprouts and parnips. Incidentally, buckwheat is not wheat and could be eaten by those allergic to wheat (though best to test it first in very small quantities).
    Christmas Eve
    Warming spiced parsnip and carrot soup (with a little coriander)
    Ham and cold Italian cold meats, with roasted peppers in the Italian style, pickles buttered new potatoes, Stilton and salad.
    Chocolate Cherrymisu" (cherries with coffee and juice soaked wheat free trifle, topped with Baileys Chocolate Luxe, with Italian mascarpone and whipping cream)
    Coffee or tea and mints
    Christmas Day
    Smoked salmon on homemade buckwheat blinis, with a little cream cheese
    Chicken breast in gravy with cranberry and port sauce, accompanied by venison and bacon sausages, Maris Piper potatoes roasted in duck fat, friedbrussels sprouts in garlic butter sprinkled with chopped chestnuts and honey-coated roasted carrots
    Wheat-free unsweetened fresh fig crumble with single cream (or brandy butter)
    Coffee or tea
    Port
    Christmas CakeHomemade orange-iced plum and wheat free "Christmas Cake", flavoured with a little Cointreau.
    Anyone interested in the recipe for any of this, please email me.

    (view changes)
    7:11 am
  3. page wheat free Christmas Menu edited Wheat-free Christmas Menu
    Wheat-free Christmas Menu
    (view changes)
    7:10 am
  4. page home edited ... This website is regularly updated by Alison Bailey, ME/CFS "expert patient" for 15 y…
    ...
    This website is regularly updated by Alison Bailey, ME/CFS "expert patient" for 15 years, ME recoverer and campaigner, member of the UK's Chief Medical Officer's Working Group on Chronic Fatigue Syndrome, co-founder of "Young ME" now "The Tymes Trust" and co-founder of UK patient support groups with Helena.
    See side panel for various links on managing ME. Recent news from Alison who uses "ME management" techniques to live a normal life.
    ...
    ideas for a wheat free Christmas Menu
    A recent paper on ME (added July 2012)
    A key element of ME recovery is working very hard to strengthen your immune system. I would recommend getting "100 ways to boost your immune system" a tiny, easy to read book as well as advice on this website. See it here on Amazon.
    (view changes)
    7:09 am
  5. page home edited ... This website is regularly updated by Alison Bailey, ME/CFS "expert patient" for 15 y…
    ...
    This website is regularly updated by Alison Bailey, ME/CFS "expert patient" for 15 years, ME recoverer and campaigner, member of the UK's Chief Medical Officer's Working Group on Chronic Fatigue Syndrome, co-founder of "Young ME" now "The Tymes Trust" and co-founder of UK patient support groups with Helena.
    See side panel for various links on managing ME. Recent news from Alison who uses "ME management" techniques to live a normal life.
    Some ideas for Christmas Menu for someone unable to eat Christmas pudding or cake
    A recent paper on ME (added July 2012)
    A key element of ME recovery is working very hard to strengthen your immune system. I would recommend getting "100 ways to boost your immune system" a tiny, easy to read book as well as advice on this website. See it here on Amazon.
    (view changes)
    7:08 am

Wednesday, June 12

  1. page photostory edited ... {bergamo02.jpg} October 2006 - I had recovered enough to work in an open plan office like ev…
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    {bergamo02.jpg}
    October 2006 - I had recovered enough to work in an open plan office like everyone else though I faced a wall to cut out extra visual stimulation and I was allowed to wear earphones with to block out noice or to listen to music at work. I had a high profile on carbon and on hidden disability issues, trying to really improve life in a wider community than ME/CFS. (By the way I gave up flying for environmental reasons - see photo). Being engaged in other things as well as ME, is a sign of real recovery. I still feel that every day is a special gift from God. I experience life "in technicolour" because I am not in dreadful pain, tortured and deprived. I have even made up for the years that were "stolen by ME" and feel a sense of thankfulness, greater understanding of myself and of society. ME/CFS has brightened my vision. In fact, the wisdom that ME/CFS has led me into has been worth all the pain and suffering. I value the right things, not shadows and deceptions. I know, not in theory, but on my nervous system, that Someone does faithfully walk beside you through the darkest places of troiuble, poverty and illness and that hope, faith and God's love can overcome even ME/CFS. That is a real prize - at the end of all the hard road to recovery. Fight for it with everything you have left!.
    {https://fbcdn-profile-a.akamaihd.net/hprofile-ak-prn2/c34.34.423.423/s160x160/992927_10200106885090338_55682289_n.jpg} Alison Bailey Castellina
    June 2013 I am now married, in our own warm and comfortable home, enjoying relaxing, quiet gardening, and a good varied diet. I have been in full time work for many years, fighting climate change and working on behalf of people with chronic illnesses at the national level. By the grace of God, I have mostly made up for "my wilderness, lost years" in terms of pension and income.

    (view changes)
    2:45 am
  2. page Causation edited What Causes ME? Why are there sixty theories about ME/CFS? ... cure ME/CFS. But we We who h…

    What Causes ME? Why are there sixty theories about ME/CFS?
    ...
    cure ME/CFS. But weWe who have
    ...
    have some inklings - immune dysfunction come nearideas and for us the top of my list.cause is "immune dysfunction".
    My Theories
    ...
    medical tests.
    Accumulated stress is one of the factors which may contribute

    There are for me four main contributing factors.
    Genetics, an inherited genetic predisposition
    to immune dysfunction in ME/CFS, which may make some badly stressed patients more susceptible than others. If there is already a genetic failure to de-stress properly during ongoing stress, clearly these patients will be more vulnerable than those whose genes enable them to "go with the flow" better. Stress can lead to all kinds of illness as well as to hyperventilation which is related to allergy which is dysfunction of the immune system..
    Depleted nutrition (e.g. too much sugar causing immune weakness) may be another vulnerability which in turn causes immune dysfunction. These factors may contribute because there is an underlying physical weakness (genetically) in people with ME. It is the physical weakness that must be taken into consideration and corrected in order for healing to start. Poor diet must be corrected, allergies must be treated and patients must learn techniques of how to de-stress regularly to help their body cope better. Techniques for two of these approaches are on this site.
    Overuse of antibiotics, the possible side effects of innoculations, vaccinations and the kind of infection you can get when travelling to Africa and hot countries.
    Chronic stress is one of the factors which may contribute to immune dysfunction in ME/CFS, which may make some badly stressed patients more susceptible than others. If there is already a genetic failure to de-stress properly during ongoing stress, clearly these patients will be more vulnerable than those whose genes enable them to "go with the flow" better. Stress can lead to all kinds of illness as well as to hyperventilation which is related to allergy which is dysfunction of the immune system.

    A Mutifaceted Condition
    Sufferers sense that healing is mutifaceted and therefore strongly object to a psychiatric approach, which is not a "cure" or even a basic treatment. Only physical interventions, those which avoid pushing the muscles, lower stress levels, detoxify the gut and balance allergic reactions i.e. those interventions which strengthen the immune system) will be effective in the long term. Specific muscle treatments in ME/CFS (e.g. graded exerise) may very well exacerbate the condition and permanently prevent recovery.We have noticed some patterns in ME/CFS, particularly relating to glandular fever and "jabs" (one, or more likely, more than one) before going abroad:
    (view changes)
    2:39 am
  3. page home edited {title3.jpg} This website is regularly updated by Alison Bailey, ME/CFS "expert patient&quo…
    {title3.jpg}
    This website is regularly updated by Alison Bailey, ME/CFS "expert patient" for 15 years, ME recoverer and campaigner, member of the UK's Chief Medical Officer's Working Group on Chronic Fatigue Syndrome, co-founder of "Young ME" now "The Tymes Trust" and co-founder of UK patient support groups with Helena.
    RecentSee side panel for various links on managing ME. Recent news and other updates:from Alison who uses "ME management" techniques to live a normal life.
    A recent paper on ME (added July 2012)
    A key element of ME recovery is working very hard to strengthen your immune system. I would recommend getting "100 ways to boost your immune system" a tiny, easy to read book as well as advice on this website. See it here on Amazon.
    (view changes)
    2:33 am

Friday, November 16

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